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Informed consent

As explained in Effective Data Analysis

Informed consent is a participant's voluntary agreement to take part in research after receiving sufficient information about its purpose, procedures, and potential risks.

Informed consent is a participant’s voluntary decision to join research after receiving enough information to understand its purpose, procedures, and potential risks. The information must arrive before participation, in a form the person can read and use to make a genuine choice. In analytics research, participants may be users, customers, or other people an organization asks to take part. section 8.4 section 8.1.2 section 8.1.1

A practical consent process should:

  • Explain what participants will be asked to do, why the research is being conducted, and what risks or possible benefits matter to their decision. section 8.4 section 8.1.3
  • Use readable, accessible information rather than hiding consent in a long terms-of-service agreement. section 8.1.2
  • Make participation voluntary, offer a reasonable way to opt out, and explain that participants can withdraw without penalty. section 8.1.1 section 8.1.2
  • Follow the stated procedures and commitments to privacy and confidentiality. section 8.1.2

A survey on attitudes toward AI

A marketing analytics team surveying people about artificial intelligence expects responses about topics such as job loss and academic integrity to be emotionally charged. Its consent information should make the kinds of questions clear before people decide whether to participate. A product analytics survey consent document provides another concrete model for communicating with participants. section 8.1.2

Consent is not a substitute for protecting the information collected. A wearable-device study involving diagnoses of hypertension or heart disease needs to consider disclosure risks and how to honor a participant’s request to withdraw their data from analysis. Consent for research participation is also distinct from requirements governing specific uses of personal data, such as those described under the GDPR and CCPA. section 8.1.3 section 8.4

How Effective Data Analysis covers it

How deep it goes
Defines the decision standard and gives practical documentation guidance, but does not specify a complete withdrawal workflow.
Examples
Uses an AI attitudes survey, a product analytics consent document, and a wearable-device health study.
What you can do after
Practice/perform drafting consent information that addresses risks, benefits, voluntary participation, privacy, and withdrawal.
How it connects
Connects human subjects research, privacy, confidentiality, protected health information, and personal-data regulation.

Related concepts

This explainer was generated by Manning's knowledge graph from the text of Effective Data Analysis. The section links point to the parts of the book it draws on.