What makes genetic data different from ordinary personal information? A complete genome can identify someone even after names, addresses, age, gender, and weight have been removed. Legal deidentification may therefore leave a serious privacy gap. section 1.2.1 section 1.2.1
Consumer genetic testing links a personal swab to a growing commercial data ecosystem. Companies may charge $60–$150 for testing and reports while relying on large ancestry and health databases to support their businesses. section 1.2.1 section 1.2.1
Genetic data can carry consequences beyond the original test:
- Privacy promises may change, including promises about sharing data with third parties. section 1.2.1
- Database access can extend to law enforcement, including searches connecting unidentified DNA with relatives. section 1.2.1
